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Alzheimer’s Disease Resources

Florida’s Alzheimer’s Disease Initiative Education Manual (PDF)

Ethics-based Policy on Driving Safety and Progressive Dementia (PDF)

Alzheimer's Research Forum
A scientific knowledge base on Alzheimer’s disease, with research news, expert commentaries, databases for peer-reviewed articles, drugs, research reagents, grants, jobs, conferences, and more.

Alzheimer's Disease Education and Referral Center (ADEAR)
The National Institute on Aging (NIA), a federal agency, hosts this web site. This site lists ongoing national drug trials or research studies on Alzheimer's disease, and national conference for caregivers and scientists on Alzheimer's related topics and a bibliographic database. The NIA staffs a questions and answer line (800-438-4380, 8:30-5:00 EST). This site also contains official government yearly reports on progress in Alzheimer's disease.

Alzheimer's Association: Kids and Teens
The Alzheimer's Association has created a page for children and teens that explains the disease and offers reviews of age-appropriate books and links to relevant websites. This is a useful resource for families dealing with a disease that can be very frightening for children.

Alzheimer's Association (National Website)
The official website of the nonprofit Alzheimer's Association. Their goals are to promote, develop, and disseminate educational programs and training guidelines for health and social service professionals, increase public awareness and concern for Alzheimer's disease, mobilize worldwide resources, and fund biomedical, social, and behavioral research on Alzheimer's disease. This site also contains background information on Alzheimer's disease, reading lists for those interested in more information, links to local Alzheimer’s Association chapters, and recent news regarding the brain and aging.

Alzheimer's Caregiver Support Online (AlzOnline)
An excellent resource site for both Alzheimer’s and dementia related caregiver support. AlzOnline is the result of teamwork between the State of Florida Department of Elder Affairs, the University of Florida, and the University of Florida Center for Research on Telehealth and Healthcare Communications. The AlzOnline website provides a statewide, internet-based support and information network for caregivers of individuals with Alzheimer’s or dementia.

Caregiving Solutions
The site has complete sections devoted to caregiving, causes, diagnosis, prevention, stages, and treatments. Users can find Memory Clinics or Adult Day Care Centers by city and by state.

Eldercare Resource Center of Palm Beach County
Palm Beach County residents that have a loved one with Alzheimer's disease or a related disorder have a single professional source to help them fulfill their wish of keeping their elder loved one at home for as long as possible.

Family Caregiver Alliance Website
This national site contains information of interest to caregivers. There are fact sheets about the early detection of Alzheimer disease, an on-line support group for caregivers, information about the Federal Tax Credit for caregivers, links to other resources, and on-line services.

Lost and Found

Mindset Project
The Mindset Project is a training curriculum based on a study conducted by Dr. David Lowenstein, a neuropsychologist at the University of Miami. Dr. Lowenstein found that a program of cognitive rehabilitation can result in improved performance on specific cognitive and functional tasks. Dr. Lowenstein’s intervention uses trained therapists working one-on-one with individuals with Mild Cognitive Impairment and Early Stage Dementia, and includes the use of individual computer-based exercises. In an effort to make these proven techniques more broadly available, the MindSet classroom curriculum was developed to be used by small groups in a classroom format over a six-week period.

University of California Irvine (UCI) MIND-Institute for Memory Impairments and Neurological Disorders
This web site provides information and resources for individuals and caregivers diagnosed with Alzheimer's disease or a related disorder.

SPIRAL: Selected Patient Information Resources in Asian Languages
SPIRAL provides consumer health information in Chinese, Hmong, Khmer, Korean, Laotian, Thai, and Vietnamese. Pamphlets are also available in English so that health care providers will understand the contents. Browsable by language or subject. The site also includes links to Asian and Pacific Islander health resources. From South Cove Community Health Center (Boston) and Tufts University Health Science Library, with support from the National Network of Libraries of Medicine.

The Caregiver's Handbook (San Diego County)
The Caregiver's Handbook is for anyone with a relative or loved one with Alzheimer's disease. This site contains the entire contents of a full caregiver's handbook online, with chapters that cover caring for caregivers, dressing, bathing, shaving, and feeding of Alzheimer's patients, nutritional information, a guide to legal and financial aspects of the disease, how to select a residential care facility, and an appendix of community agencies.

Alzheimer’s Topics Suggested Readings

    • The 36-Hour Day: a family guide to caring for persons with Alzheimer disease, related dementing illnesses, and memory loss in later life
      Nancy L. Mace; Peter V. Rabins, M.D., M.P.H. 3rd edition, 1999

    • Seven Steps to Effective Parent Care: A Planning and Action Guide for Adult Children with Aging Parents
      Donna Cohen, Ph.D. and Carl Eisdorfer, Ph.D., M.D., 1993

    • The Comfort of Home: An Illustrated step-by-step Guide for Caregivers
      Maria M. Meyer with Paula Derr, RN, 1998 (also available in Spanish)

    • The Fearless Caregiver
      Gary Barg, 2001

This is just a small sample of material available for caregivers. Please check your local library or bookstore for more options. If you have a recommendation for a book, please email us at information@elderaffairs.org.

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